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Yes, dental check-ups and fluoride treatments are allowed. Some dental cleaning solutions might contain carbohydrates, so you should ask your dentist about the solutions he or she uses. Some dentists will just use water if you ask.

You need to ask your doctor or registered dietician about this. Vomit often looks like more food or formula than it really is because it’s mixed with stomach juices. In general, we advise you to wait to refeed until your child’s next feeding.
 

In general:

  • Ketogenic lab tests are done about two weeks before your clinic appointment.
  • Electrocardiogram tests (EKGs) are done once a year. Renal ultrasounds and bone age tests are done every six months. 
  • These tests might be done more frequently if your health care provider requests them. 

Yes. Discuss how much you can vary your child’s fluid amount with the dietician.

Here are some suggestions:

  • Buy a large cooler to store foods.
  • Bring easy-to-take foods such as homemade peanut butter cookies. 
  • Make meals ahead of time and store them in small, sealable containers. 
  • Take food with you whenever you can—especially heavy whipping cream that might vary greatly in carbohydrate content. 
  • If you’ve forgotten any food, you’ll have to purchase what you need at a nearby grocery store.

Yes, fragrance-free sanitizers such as regular Purell are best.

When your child starts the ketogenic diet, we need you to be as precise as possible. That said, if you are inaccurate in measurements, it’s better to be under than over weight. For example, if you’re supposed to weigh 50 grams of cream and you end up only giving 49 grams, that doesn’t have as much of an impact as if you were supposed to give 5 grams of blueberries and gave 6 grams instead. 
 

This is generally fine. We like to monitor the level of urine ketones over periods of time to see if and how they affect seizures. This won’t have much impact in a child whose seizures are well controlled with few or no seizures. 

However, strict ketone testing is crucial during the initiation of the ketogenic diet, and when seizures increase or seizure activity differs from a child’s baseline seizure activity.

We suggest you buy a food scale before your child is admitted for initiation of the ketogenic diet. Right now, we do not sell food scales.

This information is for educational purposes only. It is not intended to replace the advice of your health care providers. If you have any questions, talk with your doctor or others on your health care team.

If you are a Gillette patient with urgent questions or concerns, please contact Telehealth Nursing at 651-229-3890.

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