Gillette Stories

Cerebral Palsy

Developmental Evaluation Clinic Provides a Powerful Team of Experts

March 7, 2025

Gillette Children’s has a new Developmental Evaluation Clinic to help answer parents’ questions about their child’s growth and development.

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Rare Disease

Gillette’s Global Partnership Advances Care for Rare Disease

March 3, 2025

Over 400 million people worldwide are estimated to live with a rare disease, and over half of those living with a rare disease are children. Gillette Children's has partnered with the International Hospital Federation (IHF) to form the Global Rare Paediatric Disease Network (GRPDN), a groundbreaking initiative aimed at improving care for children with rare diseases worldwide.

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Rare Disease

What is Pediatric Genetic Counseling at Gillette Children’s

March 3, 2025

Gillette Children’s is expanding its team of expert genetic counselors to help you find answers and make informed decisions about genetic testing and discover how a rare genetic disease might affect your child. Gillette provides solid information and support.

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Rare Disease

Gillette Children’s Announces 2025 Children’s Miracle Network National Champion

March 3, 2025

ZaLayaa Jahzara Wandrick is 12 years old. She’s an excellent cook, crafter and loves science, soccer and coding, but for much of her life, has had to deal with multiple sensory and complex medical conditions. Gillette Children's is excited to announce ZaLayaa Jahzara has been named our 2025 Children's Miracle Network National Champion.

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Genetic Conditions

Leo’s Pompe Disease Journey

February 25, 2025

Leo St. Martin is Gillette Children's 2025 Children's Miracle Network Champion. He is all about sports. Baseball, football, hockey, soccer – you name it, he wants to play it. When he was an infant, Leo was diagnosed with Infantile Pompe disease, a rare genetic disease that leads to weakened muscles. His physical and occupational therapists helped get him into a power chair when he was just three, and they continue working with him, motivating him to make the impossible, possible.

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Rett Syndrome

Gillette Recognized as Rett Syndrome Center for Excellence

May 6, 2021

Gillette Children’s is one of 15 institutions across the U.S. being honored with International Rett Syndrome Foundation (IRSF)’s Center of Excellence designation or redesignation

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Rare Disease

Robert’s Life with Prader-Willi Syndrome: A Rare Disease Story

February 27, 2019

For Janet Favorite, navigating her son Robert’s rare condition has been a rollercoaster, steadied by her family’s commitment to providing him with expert care and access to resources at Gillette Children’s. Read her story here.

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