Gillette Stories

Developmental Evaluation Clinic Provides a Powerful Team of Experts

Gillette’s Global Partnership Advances Care for Rare Disease

Over 400 million people worldwide are estimated to live with a rare disease, and over half of those living with a rare disease are children. Gillette Children's has partnered with the International Hospital Federation (IHF) to form the Global Rare Paediatric Disease Network (GRPDN), a groundbreaking initiative aimed at improving care for children with rare diseases worldwide.

What is Pediatric Genetic Counseling at Gillette Children’s

Gillette Children’s is expanding its team of expert genetic counselors to help you find answers and make informed decisions about genetic testing and discover how a rare genetic disease might affect your child. Gillette provides solid information and support.

Gillette Children’s Announces 2025 Children’s Miracle Network National Champion

ZaLayaa Jahzara Wandrick is 12 years old. She’s an excellent cook, crafter and loves science, soccer and coding, but for much of her life, has had to deal with multiple sensory and complex medical conditions. Gillette Children's is excited to announce ZaLayaa Jahzara has been named our 2025 Children's Miracle Network National Champion.

How to Advocate for Your Child Diagnosed with a Rare Disease Advice from Lisa Evert

The former president of the Midwest Rett Foundation, Lisa Evert, shares her reflections on how to advocate for your child diagnosed with a rare disease. Lisa's adult daughter, Jill, was diagnosed with Rett syndrome in 1999.

Gillette Recognized as Rett Syndrome Center for Excellence

Gillette Children’s is one of 15 institutions across the U.S. being honored with International Rett Syndrome Foundation (IRSF)’s Center of Excellence designation or redesignation

Robert’s Life with Prader-Willi Syndrome: A Rare Disease Story

For Janet Favorite, navigating her son Robert’s rare condition has been a rollercoaster, steadied by her family’s commitment to providing him with expert care and access to resources at Gillette Children’s. Read her story here.